The crazy chaotic life which is that of a CHD/trach/vent mommy. We have been busy lately, and getting to my laptop is pretty well impossible 99% of the time. In BIG news.....
WE ARE PREGNANT!! Baby 3 is on the way!!!
As excited as we are to be having anouther bundle (which better be my girl!), it is killing my nerves waiting on our fetal ECHO. I'm just praying for a heart healthy baby.In BIG David news, his cardiology appointments are now every 6 months! Yep, 2 years of ICU life, less than 7 months at home, and already on 6 month visits!!! He is progressing so well.
He is up to 4 minute sprints off his ventilator! Now, 4 minutes may now sound like much, but for an almost 3 year old with BPD and pulmonary fibrosis, that has been on a ventilator since birth, 4 minutes may as well be 4 hours!! So, yea this is HUGE for David!
Now, in physical and occupational therapy, he is prop sitting for about 5 seconds at a time unsupported and interacting more with other children!! He now says HI, NO, and UH-HUH!!
With RSV/Cold/Flu season setting in he has been a bit sick lately. Sleepy and very mucus filled, but all in all he has been great!!
Little brother Tony is growing fast!
And has become quite the big helper (as seen filling bubbies humidifier lol!)
SO, this was my little update!
Lack of night nursing may have actually come in handy after all!!
(MAYBE I will get Davids Journey updated next....?? who knows!!)
Heather
